著者

有薗 真代

出版者

京都大学

雑誌

京都社会学年報 : KJS

巻号頁・発行日

vol.12, pp.109-127, 2004-12-25

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This paper is written about experiences of Hansen's disease sufferers by using life-history method. Especially it is focused on residents' life that has been hardly talked about due to the difficulty of contacting with them. What they have told is engraved with many traces of struggle to take back their own lives. Looking carefully into it, actually they have rarely talked about the sufferings from the disease itself. They have not fought against the disease. They have fought against an outside pressure to try to determine their lives by naming them as "Hansen's disease sufferer." For that very reason, they now talk about themselves as "former Hansen's disease sufferer." They make their sayings vivid by going back to the point when they were labeled and reviving memories from there. The voices from there should keep retaining a power to criticize in recognizing historical facts of the unreasonable quarantine.