著者

丸山 マサ美 桑本 美智子 安藤 満代

出版者

九州大学

雑誌

九州大学医療技術短期大学部紀要 (ISSN:02862484)

巻号頁・発行日

vol.29, pp.49-53, 2002-03

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Present study tried to examine patient A's view of life, sense of value or happiness by her essays, letters, or diary in the struggle with illness, for the purpose of groping about terminal care of school children. Though medical staff usually have had a tendency to chink of children in terminal stage from the view of medicine, but it is also important to think of children from the view of various aspects, such as the ability of decision, parents' acting judgement or role, children's own life in the life course. In the present case, classroom for weak children was the base of A's heart, and A's classroom was the place of establishing identity. The important point for QOL of school children in terminal stage is the view of recognizing them as growing with death because they are in the process of growing and development. So it is important to take in to consideration how children spend their time and limited space from the viewpoint of children. In addition, it is very necessary for nurses to be an advocacy as well as their parents.